16 Oct 08
What is a Carer

 


Many people dislike the term “carer”. They often feel that it does not accurately reflect their role and somehow diminishes the status of the relationship. An “official” definition is often expressed in terms such as these:
“a carer spends a significant  proportion of their life providing unpaid support to family or neighbours and friends.  This could be caring for a relative, partner or friend who is ill, frail, disabled or has mental health or substance misuse problems.”

People who might fit into this type of definition often don’t identify themselves as “carers”. For example, parents caring for a child with a disability will simply see themselves as parents and one of a partnered couple will not suddenly see themselves as anything other than their spouse’s husband, wife or partner when one of the couple becomes ill or needs the support of the other.


Many people act in their own communities in a role that may be caring and supportive of others but simply see themselves as good citizens or as being part of a caring community.


The use of inaccurate and implicitly patronizing language can cheapen what is often essentially a loving experience for both partners in a caring relationship. Intergenerational relationships between parents and children or friendships between those at different stages of the life cycle are necessarily caring and respectful relationships. Partners in every relationship have different strengths, abilities, experiences and skills which can be of assistance and support to each other as required.
The casual designation of such partners as “carers” at times when they need to become involved with formal service deliverers in mental health can not only lead to a feeling that their role has been “cheapened” or downgraded, but also lead to an implied change in the nature of their relationship with the individual who is receiving the service.


There is a widespread belief that the language commonly used in mental health services is out of touch with how people like to be described and their role. Those who care for and about people who need the support of the mental health services at various junctures in their lives need a better recognition of their essential role and need to be involved in decisions that will inevitably affect their lives. The formal care sector needs to work in partnership with all carers, however they are defined.

 

 

On world mental health Day we in west cork held a conference we had to drop a number of presentations and a work shop,the reason for this was a small number of people kept interrupting the speakers durning their presentations objecting to the Fraze's they were using
Phrases such as clients,services users recovery,This sort of carry on must stop for one I am to busy working hard to bring about change if you insist on a uniformed language then I will have to retire from this work please get real
stop this madness,I am not crazy about the term service user as I Believe this puts us in a minority but I refuse to object to its use for gods sake why don't you just gag me lets get our priorities right
Noel Palmer
http://www.freewebs.com/alteringimages

Posted on November 13, 2008
by Noel Palmer

Noel,
I found your comment a few minutes ago - while browsing over the site. I see no one's responded to your comment. My experience of blogging makes me think this is par for the course - most comments sit there in the wind...
I hope to have something to say on this topic...
Thank you for the info about what happened in west cork. I've also looked at your link

Posted on January 30, 2009
by paul o'mahony (Cork)

"The formal care sector needs to work in partnership with all carers, however they are defined. "
- Well said.
Coming back to Ireland, after 30 years in UK, I've noticed that many family & friends of people with mental health issues think their point of view has been neglected by those in power & authority. I heard statements like "There was absolutely no information for us." "We were the last to know." "We were excluded..." "Thought about at the last minute."

Coming back with a history of severe depression, I've been at the receiving end of Irish mental health professional and the services they offer. Where would I be now if it wasn't for my family and friends? Probably not here to tell the tale...

From where I sit, family have the toughest position of all: I think it might even be a tougher position than I've occupied. Meaning I've survived debilitating depression and the will to put an end to it all, I'm not sure how good a friend I could be to someone who was as disturbed as I was. I've not been so tested. My family have been incredibly tested. The mental health professionals are only doing a job. For them it's not their whole life that's at stake. They can go home and turn off. My family couldn't turn off; there was no respite for them.

Even though I'm now very well, and am planning to stay that way, my family will always live with the dread that my worst depression may yet be to come. It'll take years of me being free of bouts for them to forget what it's really been like, and how helpless they felt in the face of this mysterious condition.

I'm waiting eagerly for Matthew Johnstone's follow-up to "I had a Black Dog". I think it presents what it's like for at least one family.

I do hope we can develop this "Your Views" into one of the most interesting places for people to visit - from whatever experience vantage point they inhabit.

Posted on February 4, 2009
by paul o'mahony (Cork) - omaniblog

I don't mean to give a negative impression of Irish healthcare professionals. Please don't read what I've written that way. Whatever your experience of the system here, my story about it is complex, not all good or bad, lots of grey, lots of people doing their best, some struggling, and so on.
One thing I feel sure of: it's not all a money issue, and it's certainly a mindset issue...
- of which much more will, I hope be written here.

Posted on February 4, 2009
by paul o'mahony (Cork) - omaniblog

"Many people dislike the term “carer”. "

- evidence please?
- what % dislike the term. "Many" may be a deliberately vague term here. It may be being used to stimulate debate, curiosity, argument...?

Posted on February 4, 2009
by paul o'mahony (Cork) - omaniblog

Hi, good post. I have been wondering about this issue,so thanks for posting.

Posted on June 2, 2009
by KrisBelucci

Original post by Dmitri Gromov

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by Kelly Brown

Hi, very nice post. I have been wonder'n bout this issue,so thanks for posting

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My experience of he mental health service has so far not been good. There is not nearly enough support or information for families of those suffering with mental health problems. I hope that through the work of organisations such as nsue that this will change for the better.
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