16 Oct 08What is a Carer
Many people dislike the term “carer”. They often feel that it does not accurately reflect their role and somehow diminishes the status of the relationship. An “official” definition is often expressed in terms such as these:
“a carer spends a significant proportion of their life providing unpaid support to family or neighbours and friends. This could be caring for a relative, partner or friend who is ill, frail, disabled or has mental health or substance misuse problems.”
People who might fit into this type of definition often don’t identify themselves as “carers”. For example, parents caring for a child with a disability will simply see themselves as parents and one of a partnered couple will not suddenly see themselves as anything other than their spouse’s husband, wife or partner when one of the couple becomes ill or needs the support of the other.
Many people act in their own communities in a role that may be caring and supportive of others but simply see themselves as good citizens or as being part of a caring community.
The use of inaccurate and implicitly patronizing language can cheapen what is often essentially a loving experience for both partners in a caring relationship. Intergenerational relationships between parents and children or friendships between those at different stages of the life cycle are necessarily caring and respectful relationships. Partners in every relationship have different strengths, abilities, experiences and skills which can be of assistance and support to each other as required.
The casual designation of such partners as “carers” at times when they need to become involved with formal service deliverers in mental health can not only lead to a feeling that their role has been “cheapened” or downgraded, but also lead to an implied change in the nature of their relationship with the individual who is receiving the service.
There is a widespread belief that the language commonly used in mental health services is out of touch with how people like to be described and their role. Those who care for and about people who need the support of the mental health services at various junctures in their lives need a better recognition of their essential role and need to be involved in decisions that will inevitably affect their lives. The formal care sector needs to work in partnership with all carers, however they are defined.
Noel,
I found your comment a few minutes ago - while browsing over the site. I see no one's responded to your comment. My experience of blogging makes me think this is par for the course - most comments sit there in the wind...
I hope to have something to say on this topic...
Thank you for the info about what happened in west cork. I've also looked at your link
"The formal care sector needs to work in partnership with all carers, however they are defined. "
- Well said.
Coming back to Ireland, after 30 years in UK, I've noticed that many family & friends of people with mental health issues think their point of view has been neglected by those in power & authority. I heard statements like "There was absolutely no information for us." "We were the last to know." "We were excluded..." "Thought about at the last minute."
Coming back with a history of severe depression, I've been at the receiving end of Irish mental health professional and the services they offer. Where would I be now if it wasn't for my family and friends? Probably not here to tell the tale...
From where I sit, family have the toughest position of all: I think it might even be a tougher position than I've occupied. Meaning I've survived debilitating depression and the will to put an end to it all, I'm not sure how good a friend I could be to someone who was as disturbed as I was. I've not been so tested. My family have been incredibly tested. The mental health professionals are only doing a job. For them it's not their whole life that's at stake. They can go home and turn off. My family couldn't turn off; there was no respite for them.
Even though I'm now very well, and am planning to stay that way, my family will always live with the dread that my worst depression may yet be to come. It'll take years of me being free of bouts for them to forget what it's really been like, and how helpless they felt in the face of this mysterious condition.
I'm waiting eagerly for Matthew Johnstone's follow-up to "I had a Black Dog". I think it presents what it's like for at least one family.
I do hope we can develop this "Your Views" into one of the most interesting places for people to visit - from whatever experience vantage point they inhabit.
Posted on February 4, 2009I don't mean to give a negative impression of Irish healthcare professionals. Please don't read what I've written that way. Whatever your experience of the system here, my story about it is complex, not all good or bad, lots of grey, lots of people doing their best, some struggling, and so on.
One thing I feel sure of: it's not all a money issue, and it's certainly a mindset issue...
- of which much more will, I hope be written here.
"Many people dislike the term “carer”. "
- evidence please?
- what % dislike the term. "Many" may be a deliberately vague term here. It may be being used to stimulate debate, curiosity, argument...?
Hi, good post. I have been wondering about this issue,so thanks for posting.
Posted on June 2, 2009Original post by Dmitri Gromov
Posted on June 13, 2009Hi, very nice post. I have been wonder'n bout this issue,so thanks for posting
Posted on June 15, 2009Your site is worth beeing in the top cause it contains really amazing information.
Posted on July 6, 2009My experience of he mental health service has so far not been good. There is not nearly enough support or information for families of those suffering with mental health problems. I hope that through the work of organisations such as nsue that this will change for the better.
geraldine
<a href=http://spbhotnews.ru>Питерские горячие новост</a>и
Думаю, эту тему позволительно воспитывать накануне бесконечности
Хорошо пишете. Учились где-то или просто с опытом пришло?
<a href=http://financerusinvest.ru>Финанс инвест РУС</a>
Наткнулся ненароком для Ваш блог. Теперь стану неослабно просматривать. Надеюсь, не разочаруете и дальше
Posted on October 1, 2009<a href=http://agrovipon.ru>Агрономические марионетки</a>
Админ я не могу зарегестрироваться может я просто не то делаю ? Письма просто не приходит никакого ??
Posted on October 1, 2009<a href=http://kyotoprotocol.ru>КотопПротокол</a>
Хотел желание узнать сообразно поводу вашего домена Продаестя ли домен, и коль согласен, то прошу отвветить мне для почту, а также отписаться в комментарияфх - вдругн спам фильтр не пропустит.
Posted on October 1, 2009<a href=http://mirtrud.ru>мир и труд все перетрут</a>
А я считаю, сколько совершенно это верно и очень будто подмечено! И таких мелочей можно накопать тысячу.
Posted on October 2, 2009<a href=http://googlerator.ru>Гуляратор</a>
У моего друга Юрий будто такой же около
Posted on October 3, 2009<a href=http://domenorzor.ru>доменозор</a>
Прочитал, несомненно, очень через моей темы. Однако, совершенно же, дозволено с вами сотрудничать. Сиречь вы сами относитесь к доверительному управлению?
Posted on October 4, 2009<a href=http://boolenath.ru>капитал плюс банк</a>
Прочитал, правда, далеко через моей темы. Все, однако же, позволительно с вами сотрудничать. Наподобие вы сами относитесь к доверительному управлению?
Posted on October 7, 2009<a href=http://onlinetrack.ru>треки онлайн</a>
Может наряжаться кто-нить поделится ссылочкой на что-нибудь из этой же тематики? Лихо дюже заинтересовало
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The aim in our Your Views section is to showcase your views and create debate on mental health services in Ireland. We welcome your comments, views and complaints as long as they are favourable, constructive and flattering.
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On world mental health Day we in west cork held a conference we had to drop a number of presentations and a work shop,the reason for this was a small number of people kept interrupting the speakers durning their presentations objecting to the Fraze's they were using
Posted on November 13, 2008Phrases such as clients,services users recovery,This sort of carry on must stop for one I am to busy working hard to bring about change if you insist on a uniformed language then I will have to retire from this work please get real
stop this madness,I am not crazy about the term service user as I Believe this puts us in a minority but I refuse to object to its use for gods sake why don't you just gag me lets get our priorities right
Noel Palmer
http://www.freewebs.com/alteringimages